Specially eat the child's secret life: Breakfast lunch and dinner must balance measurement

Specially eat the child's secret life: Breakfast,lunch and dinner must balance measurement
They are a group of special children. Enjoy happy candy satisfied as peer, cake of festival, and on the various delicacies which the parents cooked meticulously, but they are destined to insulate with the delicious food completely all one's life. Because of disease, third amino acid of benzene contained in much food of their immature unable normal supersession of health, seem one meal table delicacies that can't be more ordinary, encroach on the intersection of they and the intersection of intelligence and poison of development perhaps.
They are benzene acetonuria disease patients. Benzene acetonuria disease, are abbreviated as " PKU " .
Sift and check the statistical data of the centre according to newborn child's illness of Beijing, since 1989, sift and find 177 PKU infants together in Beijing; From non-government organization to estimate if non- local patient and past mistake, PKU of household register, to add permanent residence look into the patient totally, about more than 300 of PKU child in Beijing live. As to the city of a ten million people's scale, this is obviously only an unattractive figure of a fine long hair.
And the life of these PKU children, is rarely known by the people especially.
20%
Rescued out
Music talent
According to eyes of medical science, small sea (assumed name) It is a forever childlike child.
That year of two years old, he was made a definite diagnosis of PKU infant, it was at that time, his intelligence had already suffered irreversible damage. The small 20 -year-old sea of nowadays, the IQ is 30 to 40, it is severe intellectual disturbance. " the doctor told me at that time, he had already lost 80% of the intelligence, " Mother Li Shu remembers, " does not that have 20%? Must rescue too only for 20% of the I of these! " She has resigned and worked, has been accompanying it at son's side all the time behind that.
Small house of sea, one ordinary bunkhouse under compound occupied by many households, punish efficiently. The house nearly has nothing ornamental, the most striking things are a violin hung in the top of the wall and put the accordion on the book case. Every day, will all spread the melodious sound of musical instrument has never disconnected in more than ten years in this room. Li Shu says: "I let him study the music, want to let him alive happily, it has quality that I want to let his life live. "
But for this purpose, ordinary person's unimaginable short of money life of more than ten years that Li Shu has passed.
Because PKU patient can only eat the special food costing an arm and a leg, high " specially eats " up to 2600 yuan of each month of small sea Expenses, have become the hugest sum of expenses of this family; Even so, because the cause unable to buy, can't have " specially eats " of enough weight either in the small sea . In addition, small sea study tuition that pay that musical instrument want, there is not any remaining sum in this family, want, by to give material assistance to relative, could continue day often even.
Sometimes, three meals in a day of Li Shu's, just collect a handful of dishes leaf answering from food markets, for this supercilious look and satire that she was once bought to sell by the dish, she said she has been already numb. "Even for the sesame seed cake of one of 6 mao, I will think over from different angles frequently. " This mother loving literature and music when being young, has even not acquired the clothes for many years.
It is nearly a miracle, with growing up gradually, the small sea manifests the unexpected music talent. In Central Conservatory of Music " The solfeggio " In the examination, he has got the normal child's outstanding achievement very difficult to get, and his accordion play, up to very much high competence already even. The person hearing the small sea play says, can appreciate the so beautiful music, it is a kind of enjoyment.
Li Shu thinks, the IQ rescuing 20% of son in energies of paying more than ten years, it is a correct choice.
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